Just Walk 2013

    In the new year of 2013, the phenomenal fundraising force of Greg McKeague, started putting together a team to take part in the 2013 ‘Just Walk’ challenge. This was the second year Greg had led a Reverse Rett team, covering 60kms of the South Downs in just one day.

Vincent decided to take up the challenge and set about a […]

By |February 26th, 2015|Events & Challenges, Events 2013|0 Comments

Asda Bag-Packing

Spending a day packing strangers’ bags in an overcrowded supermarket four weeks before Christmas didn’t sound particularly appealing when it was first suggested to me in 2014 by our lovely local Asda charity manager. However, it did sound like it might raise some money and awareness with a relatively small degree of organisation involved (sign up, turn up, pack bags […]

By |February 26th, 2015|Events & Challenges, Events 2013, Events 2014|0 Comments

Hypnosis for Hannah

 

        In early 2012, some friends of ours got talking to a local resident and  Harley Street hypotherapist called John Mill, who was looking for a cause to support through his work. They told him about Hannah and suggested he give me a call. He did, and the rest, as they say, is history :)

Since 2012, John has initiated, organised […]

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Canterbury Coffee Mornings

Being the grandparent of a child with Rett Syndrome comes with its own particular heartbreak, frustration and sense of helplessness. Grandparents can feel a double sense of sorrow as they watch both their granddaughter and also their son/daughter and other grandchildren struggling with the diagnosis and daily implications of Rett.

Hannah’s Grandma, my mum, has never been one to simply accept […]

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Clothes and Toys Sale

Like many parents of small children, we have accumulated rather a lot of ‘stuff’ over the last 7 years, most of which we have moved from country to country and house to house, loft to loft. In 2012 I decided that it was time to have a big clear out and, at the same time, raise some money […]

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Butterflies and Blues Concert

  In May 2013 some friends and neighbours of Gill (Hannah’s Grandma) decided to get together and stage a unique evening of blues music and butterflies expertise! An unlikely and rather bizarre sounding combination, yes, but the minds behind the madness were highly talented musicians and a leading butterfly expert, so it made sense to them :)

The evening did prove […]

By |February 26th, 2013|Events & Challenges, Events 2013|0 Comments