I started writing a blog about our lives with Rett Syndrome in 2013, partly for others to read but mostly for me to let it out. It’s not chronological, it’s not scientific, it’s not always (often) terribly good. But it helps me, and sometimes I get feedback which suggests it might help others now and then too.
You can visit my own blog site, ‘Rett Syndrome and Us Uncut’, here
or you can see my author profile and published posts on The Huffington Post online, here.
Thanks for reading