Hypnosis for Hannah

By |February 26th, 2015|

 

        In early 2012, some friends of ours got talking to a local resident and  Harley Street hypotherapist called John Mill, who was looking for a cause to support through his work. They told him about Hannah and suggested he give me a call. He did, and the rest, as they say, is history :)

Since 2012, John has initiated, organised […]

Canterbury Coffee Mornings

By |February 26th, 2015|

Being the grandparent of a child with Rett Syndrome comes with its own particular heartbreak, frustration and sense of helplessness. Grandparents can feel a double sense of sorrow as they watch both their granddaughter and also their son/daughter and other grandchildren struggling with the diagnosis and daily implications of Rett.

Hannah’s Grandma, my mum, has never been one to simply accept […]

Armel: Training for Hannah

By |February 26th, 2015|

 

Our good friend, Armel, has always been a bit of a nutter. He is French, after all. He takes his training and his sports very seriously, and he has undertaken physical challenges which only the super-fit would even contemplate. He has also always had a certain connection with Hannah, who is a sucker for a handsome man with a cheeky […]

Snowball Get Togethers 4 Rett

By |February 26th, 2015|

Our Snowball Get Together 4 Rett campaign kicked off in November 2014 and will hopefully keep on rolling (get it?) throughout 2015. The idea is simple: invite some friends round for tea, coffee, cake and chat; ask them to make small donations in return for your fabulous hosting; inspire them to go away and host their own events, inviting lots […]

Rhea Paints for Rett

By |February 26th, 2015|

     In 2014, one of our biggest, most talented, yet youngest supporters, became 8 year old Rhea, who heard about Rett Syndrome and Hannah through her school’s fundraising and decided to take up the challenge personally. Rhea is a really talented artist, so with the support of her parents, she set herself the task of painting 100 unique canvases […]

Understanding the Causes of Rett Syndrome

By |February 2nd, 2015|

Certain key things are known about what causes Rett, which is a huge advantage in terms of trying to find treatments and a cure. We know that:

It is a single gene disorder.
It has been widely demonstrated to be reversible when the missing protein is replaced at adequate levels.
The condition was demonstrated to be reversible, without anyone really knowing what the […]