Rhea shortlisted for National Young Fundraiser Award!

This week we got the exciting news that Rhea has been shortlisted for a National Young Fundraiser award! Rhea is currently well underway with her new challenge and this recognition is so richly deserved. The award ceremony takes place in London on 6th July and should be a wonderful evening. Regardless of the outcome, we are immensely proud of Rhea [...]

By |2020-08-31T23:35:09+00:00April 23rd, 2015|Events 2015|0 Comments

Holding on to Hannah Concert

Following a successful 'Butterflies and Blues' concert in Canterbury in 2013, we are holding our second musical evening in Canterbury in July 2015. We are incredibly excited and grateful to have some enormously talented and established musicians giving us their time and talents for this event. The evening will consist of folk, blues, harp, harmonica, haunting vocals, Irish music, modern [...]

By |2017-05-19T00:30:44+00:00April 22nd, 2015|Events 2015|0 Comments

Just Walk for Reverse Rett 2015

May 9th will see another team of walkers covering between 5k and 60k across the South Downs, in support of Reverse Rett.  Led by stalwart fund-raiser, Greg McKeague, we (yes, I'm doing it too) will be setting out early morning, hiking up and down and round about for several hours, and hoping to make it across the finish line before [...]

By |2017-05-19T00:30:44+00:00March 26th, 2015|Uncategorized|0 Comments

Rhea Paints for Rett, again!

Last year, 8 year old Rhea was one of many students at Eaton House Manor who joined in their school's phenomenal fund-raising efforts for Reverse Rett. However, Rhea was so touched by the story of Hannah and girls like her, that she decided to take her efforts one step further, and to use her wonderful artistic skills to do so. [...]

By |2017-05-19T00:30:44+00:00March 11th, 2015|Events 2015, Uncategorized|0 Comments

Simon Langton Girls’ School

Twenty years ago, I was in the sixth form of Simon Langton Girls' School and was proud to be one of two Heads of Charity, responsible for choosing and promoting charities and organising fundraisers for our school's chosen groups. Little did I know that twenty years later, I would be back at the girls' school, asking them to support a [...]

By |2017-05-19T00:30:44+00:00February 26th, 2015|Events & Challenges, Events 2015|0 Comments

Understanding the Causes of Rett Syndrome

Certain key things are known about what causes Rett, which is a huge advantage in terms of trying to find treatments and a cure. We know that: It is a single gene disorder. It has been widely demonstrated to be reversible when the missing protein is replaced at adequate levels. The condition was demonstrated to be reversible, without anyone really [...]

By |2017-05-19T00:30:44+00:00February 2nd, 2015|About the Research, Understanding the Causes|0 Comments
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